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04.03.2009 9:00 pm

The little boy at the edge of the world

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Sherri Cook gets a kiss from her son, Chance Roth.

Sherri Cook gets a kiss from her son, Chance Roth.

“Columbus said the world is round?
Don’t you believe a word of that.
For I’ve been down to the edge of the world,
Sat on the edge where the wild wind whirled,
Peeked over the ledge where the blue smoke curls,
And I can tell you, boys and girls,
The world is FLAT.”
Shel Silverstein

It started one October, a few months into a new school year. The little boy grew moody and restless.
He erupted into volcanic rage, screaming and throwing chairs. He cursed like a sailor. During recess, he climbed over a playground fence and bolted for nearby woods.
Then one day, in a fit of anger, he did something worse. Out of the classroom, he flew down the hallway and through the school’s double doors.
A teacher caught up by the parking lot’s edge. Chance Roth was going to launch himself beneath the wheels of a yellow school bus.
He was 3½ years old. He wanted to die.
A tinge of disbelief still colors his mother’s voice. “He had never experienced any trauma,” Sherri Cook says. “He had never been to a funeral. He had never experienced a death. We didn’t know where this was coming from.”
Or where it would lead.

Afternoon sunlight bathes the front room. Ms. Cook sits, hands folded, at a dining table in her tidy Festus home.
For the moment, Chance is perched on the edge of a straight-back chair, listening as she tells his story.
“I don’t remember that,” he says softly.
“You were very young,” his mother reminds him.
Chance’s pediatrician suggested that the family find psychiatric help. Even with private insurance, it was difficult.
Ms. Cook called more than a dozen doctors, some as far away as St. Charles County. But most of them did not treat children. Those who did either had no openings or did not accept her insurance.
She finally found care for Chance at a Jefferson County treatment program called Comtrea. That makes him one of the lucky ones.

In the best of times, many Missourians with serious mental illness cannot get the help they need. With state revenue plummeting, these are far from the best of times.
The House of Representatives recently passed a budget that slashed millions of dollars from the state Department of Mental Health. It falls about $43 million short of what would be needed to maintain current services.
Unless the Senate adds more funding, waiting lists for care will grow, and some Missouri families will be left out.
Even as lawmakers cut spending for mental health, they have refused to tap millions of dollars provided through the federal stimulus bill. That money could free up state dollars to pay for desperately needed community psychiatric care and other mental health programs.
But Rep. Allen Icet, R-Wildwood, chairman of the House budget committee, is “philosophically opposed” to using federal stimulus money to expand Medicaid coverage.
Political philosophy is well and good. But kids like Chance — and thousands of adults who used to be kids like Chance — need help now. It is unconscionable to let anything, especially political philosophy, stand in the way.

A few months after he turned 5, Chance was diagnosed with bipolar disorder. At the time, his family had private health insurance, but the coverage was limited. Now Medicaid pays for Chance’s care.
It includes counseling and medication that controls his worst symptoms. But control is a relative concept.
People with bipolar disorder can veer wildly from deep depression to an almost-reckless impulsiveness. Even on a peaceful spring day, Chance is a squall threatening to erupt.
He bursts out of the living room, interrupting his mother to announce that he is going to visit a relative nearby.
“You can’t go right now, honey. I’m talking. I can’t take you,” Ms. Cook says patiently.
Back into the other room he goes. But a moment later, he again is headed for the front door to leave.

Chance will turn 10 later this month. Not long ago, his counselor asked him to start keeping a journal.
Some of the entries are heartbreaking. “He writes about how alone he feels, about how he hates himself for the way he sometimes acts,” his mother says.
With a little prompting, Chance offers to bring it out. But when he comes back, he is holding a tattered children’s book, “Where The Sidewalk Ends,” by Shel Silverstein.
“This is my favorite poem, ‘The Edge Of The World,’” he says.
Like any other third-grader put on the spot, he reads haltingly and with an awkward rhythm. “For I’ve been down to the edge of the world,” he intones.
What is it he likes most about the poem? Chance shrugs. Maybe he’d like to visit the edge of the world some day, to peek over the ledge where the blue smoke curls.
Maybe he already has.

— John G. Carlton

3 comments

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Having lived with Sever chronic Depression all of my life I will tell you that mental illness is a life devastating event. I lived just barely lived for 20 years running away from I knew not what. I would be doing great, holding a job 2 or 3 years, buying cars or even house. When suddenly, out of the blue, a black cloud came and destroyed my life. I was 35 when I was finally diagnosed with my illness and put on meds. Since then I have held my job 15 years married and have a wonderful son. But I live daily with the fear that someday my meds won’t work anymore, or I loss my insurance and be unable to afford them anymore. My illness may rear it’s ugly head at any time and could well be the ruin of 15 years hard work in just a matter of a few weeks. Mental illness is not the persons fault, we need as much help as we can give them to stay productive members of our society. Each and every child should be watched as they progress through our school system when a problem is encountered it should be brought to the attention of the child’s doctor.Or we ought to just shoot people like me and put us out of our misery.

— tictac
5:52 am April 4th, 2009

For a minute i thought this editorial was going to be about Pres Obama. He’s had a deer in the headlights look on his face all week.

Nothing like using children as a human shield when you can’t make a rational argument. Mental and other illnesses are sad, but no amount of emotional and disingenuous appeals to “put politics aside” changes the fact that this state can’t afford nanny care for everyone. Rep Icet is correct. It would be an extreme disservice to saddle the state with decades of unsustainable debt or temporarily fund ongoing programs with a one time windfall.

— Go_Fish
10:06 am April 4th, 2009

While I am a conservative Republican, I believe that as a society we need to help those who suffer due to no fault of their own. Mentally ill and physically disabled people, especially children, suffer due to no fault of their own and need to be supported. However, this group of people, unlike other special interest groups like farmers or teachers, do not have any voting or monetary influence. Therefore, they tend to be the ones who get cut first even though they are the most vulnerable.

My bigger gripe is that a lot of medicaid funding is wasted fraudulently which leaves a lot less money available for those who have true needs. The government needs to go after medicaid fraud in a big way but only gives lip service to the issue. For example, there is clear evidence of significant asset stripping on the part of elderly patients to their relatives to enable them to qualify for a medicaid bed in nursing homes while not having to “waste” their savings and giving it to relatives instead. The state regulators are afraid to go after the issue in a big way for fear of angering the special interest groups representing the elderly such as AARP. If they would stop these kind of abuses, it would leave a lot more money available for those who truly need the help.

— Expat Bill
6:08 am April 5th, 2009